Place your child?


Ann

 Our son lives in a group home 2 and a half hours away. He is now an adult and seems to be handling the move to the group home.  He will be there two years in April. He was more than we could handle as far as his behavior and we made the very difficult decission to place him in the care of others. I still worry about his care because he has limited verbal skills and he seems very aggitated on the weekends. I know my son well and know that weekends are hard due to no school or day program. He loved school and was heart broken when he could nolonger attend. We went through a number of adult day programs and due to the fact of both elderly and disabled were mixed  our son did not last long and was asked to leave.  We went through about 4 day programs and in home care.We had to move him out of our city in order to find a day program. Once I developed breast cancer I knew we had to find our son a place where we would not have the major task of his daily care. We have him visit at least three times a year but I still worry about his care. He calls every evening and sometimes I hear the anger in his voice. I would love to have him closer to home. I worry because he just goes into a rage when he feels that it is time for him to have a home visit.  We need more supports for when our children are adults and the numbers are growing. Will any of us have the needed private or governments supports for the long term care of our loved ones with autism ?  

26 months ago
Results 1 - 3

  • Steve

     I worry about these issues, too, even though my son is only 7. I, too, am an only child (I read your previous post, too). We worry about who will be around after we are gone to help make sure that our son is cared for and happy. Sometimes we see homeless people on the street and we wonder, how did they come to be there? We worry that some heartless politician will turn people with disabilities out of their group placements or that a person we trusted to make sure our son receives a check--assuming we can even find such a person--(and the person who opens his mail--if it is not our son himself) will do the right and honest thing. What can we do and who can we turn to?

    26 months ago

  • Steve

     P.S. How are you doing now, healthwise? I hope you are well! Take care!

    26 months ago

  • Ann

    Thank you I am doing well. I continue with my check ups as I promised my family I hate it as each time I go I am a bit fearful but it is getting better. Hair is back and my son stated that mommy is back. He knew I was really sick and continued to rub my bald head for luck  Thank you and hugs

    26 months ago

Sign In to leave a comment.